decline

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    Husband has extreme fatigue

    Hi everyone. I am new to the Forum and am wondering about whether extreme fatigue is normal in PALS. My husband was Dx in 9/08 (Bulbar Onset), and he has been on Rilutek ever since. His decline has been slow and steady...with increasing fatigue, muscle soreness, etc. However, beginning only a...
  2. G

    ALS Fatigue

    My husband has just suddenly in like two weeks become extremely exhausted 24/7 - not as though he needs to sleep but where he feels he has to lay down alot and would like to be able to sleep... this is new... it is common? It is an indicator of rapid decline? :(
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