Does anyone have suggestions on how to maintain physical exercise, even through dealing with this condition? I don't mean rigorous exercise, but gentle exercises that can boost patient morale. Some of my patients have gotten depressed that they could not keep up with workout regimens, so I was...
I hope that I'm not upsetting anyone by starting a new thread, but I think that this is imperative information for those who suffer from any kind of anxiety. I have pulled this list from a website, and it can be accessed easily by anyone, should they care to do the right kind of research.
My...
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Hi,
Does anyone struggle with severe pain and stiffness in their throat?
I’ve had intense pain in throat area for more than 2 years. It’s a stiff cramping pain and it’s relentless! Is it spasticity gone amok?
I’m more than 4 years in, classified as UMN syndrome. Pain, spasticity, difficulty...
Hi,
I have no formal 'tag' for my condition yet beyond being told that I have UMN death caused by either PLS or HSP.
For the last 6 months or so I have started to suffer from intense pain in my limbs - a 'shin splints' feeling in the lower part of my shin and ankle, and a pain in my upper and...
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This just crossed my path so I thought I'd pass this along:
Gulf War Claims Deadline
(Week of September 19, 2011)
For Gulf War Veterans with certain ailments like: Chronic fatigue syndrome; Firbromyalgia; Functional gastrointestinal disorders; and other undiagnosed illnesses the current...
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Hi everyone-
Some of you may remember I posted here a few months ago, indicating problems with hand dexterity, face muscles feeling week and strange nerve like pain. About 8 months later, 2 limbs EMGs, head MRI, CT scan of chest, battery of blood work, (all negative) I ended up at MGH in...
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HI Folks
I have a couple of questions. Most of my symptoms (other than my arms) seem to be UMN according to my neuro.
I did email her, but wanted to ask those of you with real life experience if this is normal UMN type of thing or something else.
My pain levels are increasing quite a bit...
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Could really use your insight and direction...
Knowing the ravages of ALS, I would much rather be diagnosed with Myasthenia Gravis any day (even though that DX is terrible but it is at least somewhat manageable compared to ALS). I had to go into the ER today with difficulty breathing and...
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