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  1. G

    To Help others understand Fibro

    My friend gave me this to print out and give to people thought I would share it with you Hello Family, Friends, and Anyone Wishing to Know Me! How do I explain this to you my family and friends? This is very difficult to do as my illness is "unseen." So allow me to begin by thanking you for...
    • gilesgirl
    • Thread
    • ability als angry brain burning cry cure depressed family fatigue fibromyalgia flu friend heart pain pressure problem research sad sleep stupid symptoms treatment twitch wrong
    • Replies: 12
    • Forum: General discussions about fibromyalgia
  2. G

    Am I being silly?!

    Hi folks. I have been experiencing various symptoms for a long time now and am one step away from a diagnosis of M.E. I have seen a neurologist, rheumatologist and M.E. specialist. Everyone seems to think I have M.E. I'm worried it could be something else, like ALS, and I wondered if you could...
    • Guest
    • Thread
    • abdomen ability als back diagnosis doctors fatigue feet flu hair mri neurologist paralysis rheumatologist slurred speech specialist speech symptoms tongue worried
    • Replies: 26
    • Forum: Do I have fibromyalgia?
  3. G

    Fibromyalgia?

    Hi everyone I recently had a nasty viral illness and found myself stuck in bed with a very sore chest/back and a high fever. That seemed to pass within a day or two, but shortly afterwards I had the onset of some very strange other symptoms. First I found that I had trouble grapping things with...
    • Guest
    • Thread
    • age als back bed breathing burning doctor eye fever fibromyalgia ice kids knee mnd muscle muscle twitching onset scared sleep sore symptoms symptoms of als twitching vision weakness wrist wrists
    • Replies: 11
    • Forum: General discussions about fibromyalgia
  4. G

    Paging Wright!

    I posted this in response to a thread by Inventor and Notme suggested discussing my EMG/NCS results with you. My neuro only sent me a summary, is that helpful to you or would you need something more specific? "Inventor, I've been following your thread closely and feel like I could have written...
    • Guest
    • Thread
    • activity als anxiety back children china cramping daily depression diet doctors emg exercise eye fasciculations fatigue free gluten hair health heart helpful insight insomnia lyme media muscle neuropathy onset rest stupid support symptoms tests tingling twitches wanted
    • Replies: 13
    • Forum: Chronic fatigue
  5. G

    Fatigue

    I'm trying to find anything that my help my dad with his terrible fatigue he is having lately. We mentioned the drug Mestinon to his ALS neurologist and he said No, that it wouldn't help him at all. Do any of you taking any vitamins? I thought that might help a little. Any suggestions would be...
    • Guest
    • Thread
    • als dad fatigue men mestinon neurologist vitamins
    • Replies: 7
    • Forum: Chronic fatigue
  6. G

    Sunflower or Seasme OIL

    Long-term use of vitamin E supplements may help protect against amyotrophic lateral sclerosis (or ALS, also known as Lou Gehrig's disease), according to a recent report from the American Journal of Epidemiology. Vitamin E. Vitamin E has attracted significant attention from ALS researchers as a...
    • Guest
    • Thread
    • als back book children chronic comfortable data food healing healthy heart helpful ice lou gehrig's disease medications natural oil pain paralysis questions sore sunflower oil supplements swallow swallowing tongue toxins vitamins wrong
    • Replies: 3
    • Forum: General discussions about fibromyalgia
  7. G

    Diagnosed in Jan

    I have never posted on any forums before but have been reading this one for a month or so and have learned a lot I was just diagnosed Jan, after a year of testing and watching the progression of symptoms. Looking back symptoms may have started in 1995, when diagnosed with "tendenitis in a...
    • Guest
    • Thread
    • als back chronic chronic pain diagnosed diagnosis emg hip leg lift pain pls progression specialist story symptoms testing tests weakness
    • Replies: 11
    • Forum: Chronic pain
  8. G

    Protomyxozoa Rheumatica

    Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS. The following is Part I of the transcript of a recent interview with Steven Fry, MD. Please do not expect your physician or other...
    • Guest
    • Thread
    • acne activity als alternative medicine autism book books brain fog catheter cfs chronic chronic fatigue syndrome clinical complain conditions diabetes doctors doxycycline drugs early energy exercise exhausted fatigue fever fibromyalgia flares foods frustrated frustration good grant happy headaches health healthy heat helpful information looking for medications medicine mercury muscle pain natural neurology pain problem relief research rheumatologist school sensitivity sick specialist story supplements support survey symptoms teen test testing tests therapy understanding wanted website work working worldwide wrong
    • Replies: 0
    • Forum: General discussions about fibromyalgia
  9. G

    A Miraculous Misdiagnosis!

    Initially I was despondent upon being diagnosed with an inexplicable genetic variant of juvenile amyotrophic lateral sclerosis. Being only 18 I assumed there was little if anything to remain living for. This all persisted until I stumbled upon an article regarding chemical neurotoxins and a...
    • Guest
    • Thread
    • about me als atrophy autism back brain brain fog death dementia diagnosis diet fibromyalgia foods ftd genetic gluten gratitude misdiagnosis muscle neurology phlegm research symptoms test working
    • Replies: 9
    • Forum: General discussions about fibromyalgia
  10. G

    FibroMy

    Does anyone post down here anymore? I have made post here before on the do I have ALS portion of forum and I seen my neuro a few weeks ago I was looking at my report to take to front desk. she markd Fibro. She never said anything to me, but for now I would be considerd in this group. This is...
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