Recent content by SBee

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    Overwhelmed with multiple symptoms!

    Makes sense to me @hope23 . The crippling fatigue or pain that affects us can be hard to describe in 'real words'. What some of us mean by saying we are exhausted can mean we may not even be able to lift an arm up for example. Thats a difficult thing for someone who does not have,or cannot...
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    Overwhelmed with multiple symptoms!

    I agree @hope23 I find the spoons explanation helpful when trying to show the impact of chronic illness to someone else. But I dont actually use it in practice for myself, I like the basic simplicity of it as an easy to see explanation. It is as we all know, an individual thing, to find the...
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    Full Circle

    Hello @ViciousCirce I think what strikes me when I look into autoimmune diseases, is how often people seem to have more than one condition going on. The second thought (and fibromyalgia whilst not known to be autoimmune falls into this category) of how many symptoms overlap. I lack the blood...
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    Intermittent fasting - positive results??

    Sometimes @sunkacola utilizing the little techniques are definitely all we can manage sometimes. So yes, the little techniques can be as big as we can manage until we feel stronger. I do substitute words for more 'user friendly' to my character. Having had a serious eating disorder in the...
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    Full Circle

    Hello @ViciousCirce and welcome from me too. I expect many of us here know the frustrations of waiting a long time to get an actual diagnosis, despite many months or years of symptoms, and you being initially led away from the diagnosis, and you now are back to the start again. I am interested...
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    Intermittent fasting - positive results??

    Well @Badger its fair to say even though I was in a minor flare prior to the injury,afterwards it all kicked off. Only coming back down a few degrees these last few days. I am not really injury prone, so can't imagine you able to hear your own bone cracking. Saw a physiotherapist this week and...
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    Forgetting how things work no energy

    Hiya @BlueBells just wanted to send you a well meaning hug, I know you have a lit going on atm. 🤗
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    Trying to please everyone im exhausted

    Hello @angib i accept your warm hug - its blowing a hooley out there this evening! I also suffer with chronic fatigue, as do many others on here. I genuinely understand how debilitating it can feel, getting upstairs or dressed can leave us in total exhaustion. I also feel ( an unwarranted)...
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    Intermittent fasting - positive results??

    I sometimes struggle with words or phrases @Badger that can put me off stuff. dont know if it would help, but maybe eliminating the word 'fasting' for maybe healthier eating might fool the mind and enable you to keep on track? Its just a bit of a self imposed mind game that can help me...
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    Diagnosed today and feeling unsure about it all

    Hello @ZoeSch I well remember the relief of a fibromyalgia diagnosis swiftly followed by an almost panicky feeling of but what do I actually do now? I would find a good GP at your surgery. Not everyone goes down the medication route, some meds work well for some, or have no effect or just do...
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    Intermittent fasting - positive results??

    Hi @Badger well I am still committed to keeping to this. Am not sure how the 8 hr window of eating suffered during Christmas though... Am not sure I was exactly eating healthily to put it mildly. I still watch the clock avidly before my coffee, the food side doesnt generally bother me tbh. Am...
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    Fibromyalgia or Palandromic Arthritis?

    Hi @Sand my understanding is rheumatoid or Inflammatory arthritis can go into remission, whereby the dmards have done their job well enough that pain, and the symptoms feel better,the drugs have the disease under better control. This remission can last months, or years for some fortunate...
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    Fibromyalgia or Palandromic Arthritis?

    @Sand just wondering, as you were on dmards, I assume the rheumatologist initially diagnosed a form of inflammatory arthritis. Jas anyone done xrays or scans for this,or the same tests for osteoarthritis? I have osteoarthritis, diagnosed by xrays, fibromyalgia, and inflammatory arthritis. With...
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    2024 was horrible for me

    @Drummer76 I regret not being with either of my parents when they passed. ( still cannot say died in relation to them). i just couldnt get to them in time. Your whole family show a lot of love and respect for your own dad,both with your actions as he die d and your daughter helping to lay him...
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    New member - Aviella

    Hell @Aviella welcome to you. You have definitely come to the right place to be surrounded by people who really do understand the complexities of living with fibromyalgia. I am sure after living with fibro for so long you have found ways to help manage it a little and live as best you can, but...
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    Feeling hopeless

    Hello @Unicorn lisa @sunkacola has given you some great advice and I hope you feel assured this forum can help you with both advice and support. I think probably all of us can identify with how you feel you have lost part of yourself. I guess you are in the UK as you have applied for PIP? As...
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    Depression

    My thoughts too @sunkacola and although hrt is a synthetic hormonal form, many of the newer types of hrt are body identical, so mimic closely the oestrogen and progesterone found naturally within the body. So its as close as possible to the hormones that decline with age or surgically induced...
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    2024 was horrible for me

    @Drummer76 I dont have enough of the right words to say how sorry I am the last year has been so unbelievably tough and sad for you. Both in your own health and also for the loss of both your dad and your dog. These are huge changes in your life. I feel for you. Finishing off with getting a cold...
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    Depression

    Unfortunately until quite recently menopause and perimenopause was a closed subject. I cant say about other countries, but in the UK it has finally been a subject ( that affects 51% of the population!) that has been more widely spoken about, and the impacts it can have on women. Of course we are...
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    New Member

    Hello @tracymarie welcome. No matter how long a person gas been living with fibromyalgia, theres always so much to learn of what may benefit us,and the need for support and understanding. Do ask anything, theres generally someone who can jump in and offer help. Acceptance is hard, for me a...
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    Exercise intolerance

    Hi @Lisadee8800 I agree with @Kcmanby ( hello and welcome!) Pushing myself too far means hours or days of rest,even if I wall too far let alone attempting more formal types of exercise. And I still get days when I am frustrated not being able to do as much as I want, and really pay for it. Going...
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    I need someone to tell me I am not crazy

    Just wanted to say hello @nadickin I cannot add much more than from @sunkacola reply above, but I will say you can feel validated by actually being diagnosed. Theres the actual 'proof' even though you shouldn't be made to feel you need to justify yourself. You sure are not crazy - I feel for...
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    New member

    Hi @Marysxx welcome. I recommend a good browse around the threads and posts. And whether a person is newly diagnosed or like yourself, been living with fibromyalgia for years, I recommend Sunkacolas post, My advice Living with fibromyalgia. I still come back to it to read again. I hope you...
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    Depression

    Hi @Fibrof39 I agree with @sunkacola and the above reply. Only thing I would query is whether some of the emotional side, the lack of periods and crying. Could it be a hormonal thing as well as the depression? I got fierce cyclical mood swings all my adult life that took me ages to realise they...
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    Hypochondria

    @BlueBells I agree that accepting depression is another part of us does help. For me, I almost 'like' putting a name/ diagnosis to such a thing so I can face it head on. Of course if we are down in the lowest of lows thats hard to do. Then its more a case of riding it out, or asking for extra...
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    Hypochondria

    @sunkacola this is my own view in that I think if we are people who have lived with depression, that has affected us in varying degrees, it never fully leaves us. There are times when it is very well managed whether by medications, therapy, or our own willpower ( and quite probably a mixture of...
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