I find I'm not coping so well
Submitted by twiztc on Mon, 02/03/2014 - 21:04
I seem to be getting a run of bad days more and more lately and my usual coping mechanisms don't seem to be working. At work I can still fake the smile and the happy voice on the phones but everytime I use the loo I ball my eye out from pain.
With the increased level of pain so to has the fatigue jumped up a few notches.
I feel like I'm losing myself, getting lost in a haze of fog so thick I can't cut my way through. The world is becoming dreamlike and the only real thing is the pounding, grinding, ripping, tearing, searing pain. I want to scream at the top of my voice to rise above the cacophony that is pain.
I was staring at my daily sectional pill pot, thinking 'if I take them all now will it make the pain go away? '
I see how this monster makes so many of us sufferers commit suicide... maybe not even intentionally,,, just wanting the pain to stop.
There is a new Fibro centre just started up. The main doctor is a friend of my brother-in-law and a fellow sufferer. It's a bit further afield but I need more help than I feel I am getting at the moment. I have an appointment for my gp as I need to be referred to get in. I hope if nothing else for better understanding and a few coping hints.
With the increased level of pain so to has the fatigue jumped up a few notches.
I feel like I'm losing myself, getting lost in a haze of fog so thick I can't cut my way through. The world is becoming dreamlike and the only real thing is the pounding, grinding, ripping, tearing, searing pain. I want to scream at the top of my voice to rise above the cacophony that is pain.
I was staring at my daily sectional pill pot, thinking 'if I take them all now will it make the pain go away? '
I see how this monster makes so many of us sufferers commit suicide... maybe not even intentionally,,, just wanting the pain to stop.
There is a new Fibro centre just started up. The main doctor is a friend of my brother-in-law and a fellow sufferer. It's a bit further afield but I need more help than I feel I am getting at the moment. I have an appointment for my gp as I need to be referred to get in. I hope if nothing else for better understanding and a few coping hints.
Comments
Anonymous
Sun, 01/29/2017 - 01:48
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Hi. I'm new here and haven't posted much, but I had to respond to this. I'm feeling the same way today. It seems from what I've been reading that many of us are in the same boat. I do hope the new doc brings you relief. I see a rheumatologist for my RA and Fibro and have found no medications that I can tolerate and no relief from the chronic pain and tension in my back and shoulders. Then the headaches and sleepless night make in unbearable. I too am about at the end of my rope. I take a day at a time and try to relax with visualization and meditation, yoga when I'm able. I hear people speak of 'flares'. I know when I'm having an RA flare, but with Fibro, it's every day. I hope thngs get better for you.
Anonymous
Sun, 01/29/2017 - 01:48
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You're definitely not alone. I Hope you find some relief. I've found for me that it's somewhat helpful to try to find moments in the day to just relax and try to find something else to occupy my mind besides the pain. A funny movie or a good article, or the comforting words of a friend. It's still very frustrating I know. I Wish you the best, and don't give up.
Anonymous
Sun, 01/29/2017 - 01:48
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Thanks peeps. I'm very glad we have this place where we all know what it's like.
Anonymous
Sun, 01/29/2017 - 01:48
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Hello, I have just come upon this web site, reading this story has given me new hope. Thank you.
Anonymous
Sun, 01/29/2017 - 01:48
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I know exactly what you mean by everything seems dreamlike. I feel like I'm so use to just pushing through the pain that I don't ever take in the moment. My memory sucks, and I just always feel dazed because most of my concentration is taken up by the pain. Not to mention the fatigue makes me a zombie. I feel like my sole purpose each day is to get as much sleep as possible.
Anonymous
Sun, 01/29/2017 - 01:48
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Hi Everyone! I had back surgery on Dec. 6th, and it thru me into a terrible flare...but I never got out of it. It's been horrible. I'm being told in physical therapy that I have now developed 'trigger points' and one in my left thigh is terrible! Anyway, long story short...I called my friend since high school that had been touting something called Thrive by Le-Vel for energy and it helps with pain. It's all natural vitamins, minerals, amino acids, plant extracts, probiotics, etc...that helped me greatly with some energy. I also take a magnesium/malic acid combo and that helps energy also. I get it at Vitacost.com and it is not expensive. I still was having problems after going back to work, so after a VERY bad Friday, I called my Rheumatologist and went in. He doubled my Neurontin (gabapentin) to 600 mg's - 3 x's a day. He also gave me Skelaxin and I had already been on Norco. I haven't taken much of the Skelaxin because it makes me sleepy, but by the 2nd day after increasing my dosage of gabapentin I felt much, much better. I still have some discomfort but nothing like before. (I did not write this to try to sell Thrive to anyone. I was so impressed I did become a distributor, but you should try it because it is an awesome product that will change your life!)
Good luck and I hope that maybe something in this post will help you! God Bless you and I hope you find relief very soon.
Anonymous
Sun, 01/29/2017 - 01:48
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I moved a few months ago did not even have a flare during it all....but I joined a fitness club so I could meet people and start getting some exercise.....I followed their instructions of how to ..and when..paw ell been doing water aerobics and recumbent bike twice a week ..four days.. Doing this since February..know I am in bed with a flare..ai tried to explain when I started this that I could not ov whelm my body...but I did..now increasing all my mess..and can
Barely move.....so much for it being good for fibro...even the personal trainer could not understand my problems...solo becarefule listen to what you know...
Anonymous
Sun, 01/29/2017 - 01:48
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I am sorry that you are enduring such pain. I have a relative with this condition and it has been anything but easy. Stay strong. Thing will get easier. It just takes a little time. Never give up. There is light at the end of this tunnel.There always is.
Anonymous
Sun, 01/29/2017 - 01:48
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I am brand new to this site today. I can understand what you are going thru. I started with Vitamin D deficiency my Doc missed and my back muscles were very week and ached. I could not even reach for anything without my spine going out of place. Be mindful of your Vitamin D, you should be at level 30. When my spine MD tested me I was at 13. I am now at a good level. Now have Fibromyalgia since last September 2013. My life stopped. Physical therapy about killed me and only made me cry as they would push me. My body hates drugs, so the only thing my Spine MD gives me is amitriptyline in a very small dose which I take 1/2 at 5pm and the other 1/2 along with Diazapam which is also used for spasms, at bed time. they help with pain and help you to sleep. but can make you drowsy in am. I suffer during the day and can only take Aleve. I also use a tense machine which helps too!I loss my job because I had a flare up which sent my blood pressure (which I never had high blood pressure before) above 170. I had been hiding my entire health issue from my Bosses until that day. Went to my spine MD and he sent me home to rest.Now on high blood pressure meds.Not to write a book here, but have you heard of the book Unlearn Your Pain by Dr. Howard Schubiner, MD?My spine MD keeps telling to get it. I was at my spine MD office the other day and a Lady told me that book helps. It's about Mind, Body and Spirit and the negative brain waves we have learned. I was an abused child and I have never faced it. I was also bullied.Two bad marriages and the recent one doesn't mind cursing me at times.So the stress, anxiety keeps telling me negative brain pathways. I am going to get this book. google it and see what you think. I can say on a positive note, that when I have gone on interviews for a new job, I don't seem to have any pain. I am positive and excited.At home I can't even lift a gallon of milk, vacuum or even cut the grass or I am back in the MD's office. My right ribs like to hurt and thrust out when I am in pain.so I am going to try this start positive thinking, but realize the pain will not go 100% away.I hope this helps someone. stay in touch, we all need the support! My husband doesn't get it in 100%, but I use to do EVERYTHING and now he fusses if I do something or lift something I shouldn't. He is 71yrs and an asthmatic. We are both disabled and trying to help each other.
Anonymous
Sun, 01/29/2017 - 01:48
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hey everyone I am new too. You should check out what happened to me today but I am not sure how to direct you to my thread as I just joined. I want to start a blog here but now sure how. Anyways, I'm sorry you guys are in so much pain too! Gentle hugs!
Oh, and I am noting what someone here said about the personal trainer. Going to get one and I will definitely take note of that.
I have gotten a lot better to the point where I push myself a lot....that's why I'm in bed sleeping on a bag of peas!
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