Fletch hopefull
New member
- Joined
- May 29, 2024
- Messages
- 2
Hi to all,
I'm a fibromyalgia sufferer and have been diagnosed for approximately a decade.I had a reasonably supportive GP for most of that time but a change of GP a year ago led to some problems....
A long time ago in a distant galaxy etc.lol. I had many back issues after a lifetime in the building trade and after a doctor's visit and an MRI I was informed i had a few collapsed spinal discs and a spinal laminectomy was recommended and offered.making the mistake of not doing my own research I accepted the operation.
This was a decision I have regretted ever since, initially after the procedure I was left with spinal neuropathy,drop foot and constant chronic pain.This isn't a plea for sympathy but hopefully a warning for all.
Faced with being unable to work I was thrown onto the mercy of the DWP and was the first of the new universal credit claimants.I could wax lyrical regarding a life of contributions and the total Kafkaesque nature of the DWP.however to to draw a long story short...17 months without a penny in benefits I was at an all time low ebb.
Lack of heating and a cold winter resulted in pneumonia and renal failure,after a few weeks in intensive care I survived but never fully recovered.
A few years later and continued health issues I was diagnosed with fibromyalgia and various arthritic conditions.After this I finally got my benefits and PIP awarded and life was sort of bearable.
Forward a few years and I had a regular routine of doctors visits and regular MRI's to check spinal movement.However I was given a new GP and things began to go badly wrong.
After experiencing pain in my right hip which was a new development I visited my new GP to request some help and advice.For all of my diagnosis of fibromyalgia I had continued driving without any serious problems and considered myself a competent and responsible driver.
My doctor didn't appear to have any knowledge of fibromyalgia and kept referring to it as a "syndrome" despite which she expressed doubts as to my ability to drive safely.I was shocked by her attitude and obviously disagreed.living in a rural area with no access to public transport losing my car would be a nightmare and the end of any independence i had left.
She examined my leg strength and seemed disappointed when I completed the exam successfully.
A few weeks later I received a letter from the DVLA regarding a complaint as to my ability to drive safely.Moving forward after several months
worrying and stress with the very real risk of losing my driving licence I had a driving medical assessment which I passed and without any recorded faults thankfully.
My new GP totally ignored all medical procedures and guidelines for patients suspected of being unfit to drive and maliciously,in my eyes, reported me.
I am currently pursuing a complaint with the general medical council regarding her behaviour but if you think your doctor is unsympathetic towards your fibromyalgia then things could be seriously worse.
A warning to all...you do not have to accept treatment or appointments from a doctor you do not like or trust.patient choice, exercise it or suffer the consequences.
I'm a fibromyalgia sufferer and have been diagnosed for approximately a decade.I had a reasonably supportive GP for most of that time but a change of GP a year ago led to some problems....
A long time ago in a distant galaxy etc.lol. I had many back issues after a lifetime in the building trade and after a doctor's visit and an MRI I was informed i had a few collapsed spinal discs and a spinal laminectomy was recommended and offered.making the mistake of not doing my own research I accepted the operation.
This was a decision I have regretted ever since, initially after the procedure I was left with spinal neuropathy,drop foot and constant chronic pain.This isn't a plea for sympathy but hopefully a warning for all.
Faced with being unable to work I was thrown onto the mercy of the DWP and was the first of the new universal credit claimants.I could wax lyrical regarding a life of contributions and the total Kafkaesque nature of the DWP.however to to draw a long story short...17 months without a penny in benefits I was at an all time low ebb.
Lack of heating and a cold winter resulted in pneumonia and renal failure,after a few weeks in intensive care I survived but never fully recovered.
A few years later and continued health issues I was diagnosed with fibromyalgia and various arthritic conditions.After this I finally got my benefits and PIP awarded and life was sort of bearable.
Forward a few years and I had a regular routine of doctors visits and regular MRI's to check spinal movement.However I was given a new GP and things began to go badly wrong.
After experiencing pain in my right hip which was a new development I visited my new GP to request some help and advice.For all of my diagnosis of fibromyalgia I had continued driving without any serious problems and considered myself a competent and responsible driver.
My doctor didn't appear to have any knowledge of fibromyalgia and kept referring to it as a "syndrome" despite which she expressed doubts as to my ability to drive safely.I was shocked by her attitude and obviously disagreed.living in a rural area with no access to public transport losing my car would be a nightmare and the end of any independence i had left.
She examined my leg strength and seemed disappointed when I completed the exam successfully.
A few weeks later I received a letter from the DVLA regarding a complaint as to my ability to drive safely.Moving forward after several months
worrying and stress with the very real risk of losing my driving licence I had a driving medical assessment which I passed and without any recorded faults thankfully.
My new GP totally ignored all medical procedures and guidelines for patients suspected of being unfit to drive and maliciously,in my eyes, reported me.
I am currently pursuing a complaint with the general medical council regarding her behaviour but if you think your doctor is unsympathetic towards your fibromyalgia then things could be seriously worse.
A warning to all...you do not have to accept treatment or appointments from a doctor you do not like or trust.patient choice, exercise it or suffer the consequences.