Loulou22
New member
- Joined
- Jun 21, 2023
- Messages
- 3
- Reason
- DX FIBRO
- Diagnosis
- 09/2022
- Country
- UK
- State
- UK
I have only found this forum tonight. I just want to say “Thank you”
I have had Fibromyalgia diagnosed for about 18 months now. Initially I felt shocked at how many things that I couldn’t explain emotionally how I felt, we’re impacted, not Just the widespread pain and fatigue, Fybro fog, aversion to noise etc. I’m working Full time and for the most part my family and colleagues are supportive. I Just have felt so frustrated by people’s expectations of me! People judging if I am having a good or bad day without actually asking me it’s ludicrous ; but then the absolute clincher is when they follow it up by saying “ they get it” “ they understand what your going through”.
It can feel so frustrating and Lonely at times, but actually reading other people experience with such honesty has been refreshing, seeing comments from other sufferers who do actually get it …… wow Just Thank you from the bottom of my heart this forum may save what is left of my sanity !!!
I have had Fibromyalgia diagnosed for about 18 months now. Initially I felt shocked at how many things that I couldn’t explain emotionally how I felt, we’re impacted, not Just the widespread pain and fatigue, Fybro fog, aversion to noise etc. I’m working Full time and for the most part my family and colleagues are supportive. I Just have felt so frustrated by people’s expectations of me! People judging if I am having a good or bad day without actually asking me it’s ludicrous ; but then the absolute clincher is when they follow it up by saying “ they get it” “ they understand what your going through”.
It can feel so frustrating and Lonely at times, but actually reading other people experience with such honesty has been refreshing, seeing comments from other sufferers who do actually get it …… wow Just Thank you from the bottom of my heart this forum may save what is left of my sanity !!!