It hasn't been confirmed that I have fibro and the waiting list is a mile long for rheumotology. Apart from the usual symptoms I feel woozy sensations which only last seconds . Does anybody else experience these as I don't want to make the mistake of thinking everything is fibro. My GP (because of the confusions) has arranged for me to have a MRI brain scan and banned me from driving. Your comments would be appreciated.
Yep, I agree, good idea. After a vertigo attack put me on a stroke/neuro unit for a week, up to last week, I've realized docs often ask if the sensation is dizziness or real vertigo, a feeling of movement like a) on a ship, b) on a roundabout, c) in a lift, d) happening by moving... Mine was actually different to all of these. It was hours not seconds. They could only put it down to blood pressure, cos that was also high. Maybe, altogether perhaps some kind of physical / mental stress, which is increasing at the moment simply due to decreasing energy.
as I don't want to make the mistake of thinking everything is fibro.
This put me on to the thought that asking if something is fibro is actually a sufferers version of the trash can diagnosis: If you don't know what else it is, it's fibro. Ironically these people still feel insulted by that feeling....
Putting a symptom down to fibro is giving up on it and on the chance that it might be improved by something. So I've never put anything down to fibro, even tho I fully accept the diagnosis as a means to find people with similar symptoms and possibly helpful treatments.
My question what cause a symptom has is not answered by "fibro", that's a no-answer, because I don't know what fibro is. Approaching its "cause" to me means educating myself and listening to my body what mechanisms, what patterns there are and changing anything i can change to see how it changes.
In my case I'm first trying to get a new angle on stress/relaxation. Which at the moment is not helping, I'm going on the stress route, can't get out, but for a short time the opposite extreme sometimes heals me...
