pafjljh
New member
- Joined
- Apr 18, 2016
- Messages
- 2
- Reason
- DX FIBRO
- Diagnosis
- 04/2016
- Country
- US
- State
- AZ Arizona
Recently I suspected that I had RA like my father did during his life. But after seeing a specialist in the field I found that no I didn't have RA I had OA in more than one joint and Fibromyalgia in mild form. Now some would think that is a better diagnosis but I found myself scared by the one I was given.
Why, because instead of my father's disease I have my mother's disease or two of them. With both my parents I saw vital strong individuals have their quality of life be taken away. But with my mother it was even harder. From the time I was a child my father had RA but my mother was an active woman. She was a crossing guard, a housewife, she loved to walk and stay active. Than the OA started to attack her joints, than she ended up with Fibromyalgia along with it. I saw this woman go from being active to having limited movement. She fought it for years trying to stay active, but than had to resign herself to using a cane than a walker, than a wheelchair. Than came the worse thing of all the last six months of her life she spent confined to bed because her back and joints could no longer support her. This was a nightmare in itself because we had to help her move and because of the fibromyalgia nerve pain this was hard to do, and we had to be careful.
Now here I am a woman in her early fifties once vital herself, having worked as a care attendant and as a file clerk. Someone who like her mother loved to walk. Now I find that I can no longer do the work I use to do I struggle to even hold down jobs online because my concentration and patience level aren't what they use to be. I am tired most of the time and in pain especially when standing for lengths of time. I can't walk the way I use to, so now my quality of life has been lowered the same way I saw it in my mother. So, I am scared I won't pretend that I am not. Doctors can tell me this is a better diagnosis, but I can't see it that way, not after what I witnessed.
Why, because instead of my father's disease I have my mother's disease or two of them. With both my parents I saw vital strong individuals have their quality of life be taken away. But with my mother it was even harder. From the time I was a child my father had RA but my mother was an active woman. She was a crossing guard, a housewife, she loved to walk and stay active. Than the OA started to attack her joints, than she ended up with Fibromyalgia along with it. I saw this woman go from being active to having limited movement. She fought it for years trying to stay active, but than had to resign herself to using a cane than a walker, than a wheelchair. Than came the worse thing of all the last six months of her life she spent confined to bed because her back and joints could no longer support her. This was a nightmare in itself because we had to help her move and because of the fibromyalgia nerve pain this was hard to do, and we had to be careful.
Now here I am a woman in her early fifties once vital herself, having worked as a care attendant and as a file clerk. Someone who like her mother loved to walk. Now I find that I can no longer do the work I use to do I struggle to even hold down jobs online because my concentration and patience level aren't what they use to be. I am tired most of the time and in pain especially when standing for lengths of time. I can't walk the way I use to, so now my quality of life has been lowered the same way I saw it in my mother. So, I am scared I won't pretend that I am not. Doctors can tell me this is a better diagnosis, but I can't see it that way, not after what I witnessed.