Newly Diagnosed today

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Geordielass2575

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Oct 29, 2021
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Not told a great deal, just diagnosed today. All I know it’s constantly pain and I’m constantly feeling exhausted as in a total burn out! Scared to plan anything as sometimes getting up is a huge problem in itself! I also have diabetes asthma and Arthritic knEE’s so quite a load going on. Been diagnosed Chronic Pain and Chronic Fatigue couple of years ago but just seen a Rheumatologist today. Not told much as I appreciate they so busy with COvid but he was just chatting and looking at his watch the whole time, so I felt like asking him questions was holding him back on whatever he needed to do. He was pressing on certain points that were so painful to even touch, I came out with new diagnosis, more pain than when I entered where he was pressing on in addition where I told him I felt pain in first place. He’s going to phone me in couple of weeks and Write to my GP. Thank you for accepting me in this group I hope to learn more of this condition from yourselves who are going through this a lot longer than I.
 
Hi Geordielass,
I'm new here too. Everyone has been very welcoming.
There is a huge problem in the medical world and it's become insanity since covid. I don't know what people are going to do. Something bad happened to my son a few months ago and when I spoke to the detective he kept looking at his watch like every few minutes. Last time I went to the dermatologist (I was a new patient) the lady I saw talked to fast I couldn't keep up and she spoke to her helper in the room not me. At the end I asked if she would mind going over 1 more thing and I mentioned not wanting to take too much of her time. She said I had too much stuff for a first visit and she's only alloted 15 mins per patient!? I was a new patient,duh first visits are supposed to be longer. Not to mention there wasn't 1 person in the waiting room.
I tired to go to my family practice 2 weeks ago because I was sick. Thought I had strep and they don't see sick patients any more. what!??
So how do I get a strep test? I was told to go to urgent care. I pay thousands of dollars a year for insurance and I'm not sitting in an urgent care for 5-6 hours. I feel like Alice floating down the rabbit hole. Lije Jemima said, we have to take alot of this in our own hands. Boy I wish we could give each other referrals on here for good doctors!
 
It feel like getting a number at the deli counter with a huge line forming behind you.
You needed like 4-5 things but only ended up asking for a lb turkey breast. But you can't even make a sandwich because you don't have cheese! I was told I had fibromyalgia but didn't get any mustard with my diagnosis!
 
Hi @Geordielass2575 aw your a little sweetie, 🍬 yeah if you wanna go somewhere where the majority of the people have fibromyalgia, this is a good place , yes we get the hot needle horrible annoying pain in the joints ( had it in the legs really bad a few nights ago + kept me awake nearly all night) have they offered you any medication yet? Or is it cos it’s still in the early days? I’ve found taking things out of my diet helps, taking my gabapentin, putting my new pain cream on and resting when my system tells me to, they might try you on different medications, it’s probably gonna be trial and error thing with this condition cos it’s an awkward one, a few of the other members should be on later to give you some more advice on it, till then try not to stress 🌺🌸🌷
 
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Not told a great deal, just diagnosed today. All I know it’s constantly pain and I’m constantly feeling exhausted as in a total burn out! Scared to plan anything as sometimes getting up is a huge problem in itself! I also have diabetes asthma and Arthritic knEE’s so quite a load going on. Been diagnosed Chronic Pain and Chronic Fatigue couple of years ago but just seen a Rheumatologist today. Not told much as I appreciate they so busy with COvid but he was just chatting and looking at his watch the whole time, so I felt like asking him questions was holding him back on whatever he needed to do. He was pressing on certain points that were so painful to even touch, I came out with new diagnosis, more pain than when I entered where he was pressing on in addition where I told him I felt pain in first place. He’s going to phone me in couple of weeks and Write to my GP. Thank you for accepting me in this group I hope to learn more of this condition from yourselves who are going through this a lot longer than I.
Hi Geordielass,

Welcome - it's nice to have you here, but I'm sorry for the reason! There's a lot to process with a fibromyalgia diagnosis, but take heart. While the condition currently has no cure, it is something that can be managed, and we can adjust our lives around it until we feel more in control and like ourselves again.

If you don't know a lot about the condition, jump on Google and do some reading - show the good articles that you find to your loved ones so that they can understand the process you're going through too. I found the full symptom list on the Living Smarter With Fibromyalgia website really helpful for understanding what was and wasn't going on in my body - manifestations can be quite varied!

Take a stance of being really kind to yourself as you go through this process - it helps keep symptoms down, and is so important as we figure out our way. I replied to someone at the beginning of their fibro journey the other day, so rather than regurgitating the same things, I'll share what I wrote here:
Learning to do more of things like stress management, sleep hygiene, eating a healthy diet, light daily exercise, pacing your daily activities, etc. all make a really big difference to symptoms - honestly, more than you imagine. It's definitely worth having a read of our moderator Sunkacola's fibromyalgia management guide here, as she gives some great tips. Exploring relaxation techniques for stress management can be really helpful - we're all a bit different, so try to find what works for you. You may also find that you have chemical or dietary sensitivities - experimenting with cutting things out one at a time may help you figure out how to provide some relief, but this isn't true for all of us!

Have a read up on "spoon theory". This will help you get the measure of pacing, which is really vital in fibromyalgia. You might also find it helpful to start a little notation diary, in which you track your daily symptoms and what else is going on, to see if you can spot any triggers that you'd then be able to avoid/manage. Triggers might be things like doing too much of an activity, being around someone you find stressful, having too much alcohol, getting too hot/cold - the list goes on and on. When we understand our triggers, we can navigate how best to either avoid them, or give ourselves extra support when we can't get around them!

Whatever you try, don't make too many big changes too fast. By making smaller incremental changes, we can pinpoint what actually helps while not shocking our body and setting off a flare. You may decide to try medications for fibromyalgia prescribed by your doctor - with these be careful, because they don't work for everyone, most have pretty hefty side effects, and some can be difficult to withdraw from. So, do some research before making an informed decision! If you read around in the forum here, you'll see that a lot of us have had more success with stacking certain supplements. Unfortunately, there's no definitive list because we all seem to be different, but you can explore this and experiment if you want to.

All of us go through a period of grief with fibromyalgia, and if that's what you find you have, you will need to take the time to process. This is an achievable feat, and acceptance is the goal. Fighting against the condition will only leave you stressed and trigger your symptoms more, so it's a case of working towards making peace with it, and finding (and potentially gradually stretching) your new limits, so you can enjoy the best quality of life possible. Doing all these things will almost certainly help you bring your symptoms down and get them more under control. Fibromyalgia does tend to go up and down, but never assume that the way you're feeling now is permanent!

The last thing I'll say is that it really helps to keep in mind that fibromyalgia pain is horrible, but it isn't a threat - there isn't real damage to our bodies, so it can be useful to try to think of it as something we don't need to be scared of. It's an overly loud signal that can help us figure out when we need to slow down, or when we're overwhelmed, and it's something that gets much less scary with time. That's not to say it's a picnic - it's not a fun thing to be lumped with - but we can think our way out of a lot of suffering by allowing it to come and go as much as we can. All of the other symptoms - the fatigue, the fog, the dizziness, the recall issues, and more - will also come and go, and can improve a lot if we find the right approach for our bodies.

All of us here will always be around to answer any questions you have, or commiserate when you need to vent. You're not alone!

Good management can make such a difference - my symptoms are now a fraction of what they were when I was first diagnosed - but gently working your way towards acceptance is where you should focus now, alongside beginning to consider what treatment/management strategies you might want to try. Take your time, practice self-compassion, and reach out whenever you need to - as Auriel said, try not to stress! This forum is a gold mine of info, and the search function is really helpful. Sending all the well-wishes 🌻
 
Not told a great deal, just diagnosed today. All I know it’s constantly pain and I’m constantly feeling exhausted as in a total burn out! Scared to plan anything as sometimes getting up is a huge problem in itself! I also have diabetes asthma and Arthritic knEE’s so quite a load going on. Been diagnosed Chronic Pain and Chronic Fatigue couple of years ago but just seen a Rheumatologist today. Not told much as I appreciate they so busy with COvid but he was just chatting and looking at his watch the whole time, so I felt like asking him questions was holding him back on whatever he needed to do. He was pressing on certain points that were so painful to even touch, I came out with new diagnosis, more pain than when I entered where he was pressing on in addition where I told him I felt pain in first place. He’s going to phone me in couple of weeks and Write to my GP. Thank you for accepting me in this group I hope to learn more of this condition from yourselves who are going through this a lot longer than I.
Hello Geordielass, what a great handle you have chosen. :)
I hope you can find helpful information and support here. One thing I always recommend to people is to check out my post on all the things y you can do for yourself that you may find helpful. It will seem like too much when you read it, but you don't have to do it all at once, or do it all, at all. Just try some things and do your own experimenting. I can almost guarantee that there's something there that will help if y ou do it even though nothing there (or elsewhere that we know at this point) will cure it.
Best of luck to you and welcome to the forum. I hope you gain some benefit from being here.

 
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