Mandy76
New member
- Joined
- Mar 10, 2023
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 03/2023
- Country
- UK
- State
- NW
I have been suffering for a year now, started off with wide spread pain and fatigue in March 2022, fast forward to 25th August, I was in so much pain I couldn't get out of bed, the fatigue was a like a sink hole that pulled me in, from that day I haven't been able to work.
My once busy life helping others either through work or family/friends was reduced to relying on others to help me, I'm 46 and I just can't comprehend how my life has changed so dramatically.
I have wide spread pain that on some days is at a point talking and moving is a killer, my memory is shocking, I'm convinced I was meant to be Dora from Nemo! The fatigue is on a whole new level and recently I have suffered days of no sleep, but I think this may be down to finding out my dad has Lung Cancer, we are still waiting for the results of the stage.
I have started counselling because my mental health has dipped to the point I think it would be better for my family to be without me, however the thought of my children/grandkids and very supportive partner grieving me stops me.
How do people cope with Fibro, CF, CP? this cold weather in the UK is absolutely no help.
Once I would never leave the house without my face fully made up, my hair on point and Tigger style bounce in my step, now, because I can't really leave the house for social events or any other reason, all those things are long gone, I feel like I have lost a huge part of myself.
My once busy life helping others either through work or family/friends was reduced to relying on others to help me, I'm 46 and I just can't comprehend how my life has changed so dramatically.
I have wide spread pain that on some days is at a point talking and moving is a killer, my memory is shocking, I'm convinced I was meant to be Dora from Nemo! The fatigue is on a whole new level and recently I have suffered days of no sleep, but I think this may be down to finding out my dad has Lung Cancer, we are still waiting for the results of the stage.
I have started counselling because my mental health has dipped to the point I think it would be better for my family to be without me, however the thought of my children/grandkids and very supportive partner grieving me stops me.
How do people cope with Fibro, CF, CP? this cold weather in the UK is absolutely no help.
Once I would never leave the house without my face fully made up, my hair on point and Tigger style bounce in my step, now, because I can't really leave the house for social events or any other reason, all those things are long gone, I feel like I have lost a huge part of myself.