Nayzam
New member
- Joined
- May 9, 2016
- Messages
- 3
- Reason
- DX FIBRO
- Diagnosis
- 07/2001
- Country
- US
- State
- MA - Massachusetts
Hi, I am new to this forum, and so very happy to have found it. I am a 40 year old mother of 3. I had been diagnosed over 10 years ago by a rheumatologist; however, my primary had me convinced for years that it was a disease that doctors had made up. That they just came up with a name for patients with issues like ours and grouped them as having fibromyalgia when they really didn't know what the real issue was. I had trusted his claim because I had a hard time believing in a diagnosis for something that they didn't have a true test for other than symptoms and pressure points. Because of this disbelief, I have been left completely untreated for ten years. I have suffered the pain, fatigue, and we'll I don't need to continue as everyone here knows.
The " brain fog" became more apparent a little over a year ago which has finally brought me to accepting that this illness is for real. That I am not just over worked or under stress....that how I have felt and pushed myself through for over ten years untreated was a real disorder. That with treatment my days could go bit easier.
After my husband finally forced me to find out what is wrong with me, i had gone through over 6 months worth of tests by many different specialists. After being told by a new rheumatologist, orthopedic surgeon and neurologist that fibromyalgia was definitely one of my ailments, I knew that there was no way that these specialists were all in the same mindset of "grouping" me with a fictitious disorder and that it was definitely time to get a new primary. I'm on the hunt for one now!
Unfortunately, I am still left untreated as every specialist had suggested I go back to my primary and after I explained to them that he does not believe in fm they recommend pain management. Well, I live in a small town. We have one pain management center. I called to schedule an appointment in late March and was given an appointment for mid August. So, I continue to suffer with the fm, degenerative arthritis throughout my body, spinal stenosis and 2 bulging disks.
I have been online researching fm and stumbled upon this forum. I must say, it was like I have been in a crowded room w ith strangers and this forum was finally a familiar face. It is amazing to read everyone's stories and understand exactly how you all feel. I have always been the type to push through everything, fight the fatigue, deal with the pain, put on the happy face, because I thought this was all in my head. I thought that how I felt was a result of having worked a very physically straining job for 50, 60 hours a week for 17 years. I can't explain how it makes me feel to know it is not in my head and that I am not being a "whimp" about how I have been feeling.
I am so sorry for this lengthy introduction, but I really needed to get this all out there to people who will understand for a change. I look forward to meeting some "familiar faces" so to speak.
The " brain fog" became more apparent a little over a year ago which has finally brought me to accepting that this illness is for real. That I am not just over worked or under stress....that how I have felt and pushed myself through for over ten years untreated was a real disorder. That with treatment my days could go bit easier.
After my husband finally forced me to find out what is wrong with me, i had gone through over 6 months worth of tests by many different specialists. After being told by a new rheumatologist, orthopedic surgeon and neurologist that fibromyalgia was definitely one of my ailments, I knew that there was no way that these specialists were all in the same mindset of "grouping" me with a fictitious disorder and that it was definitely time to get a new primary. I'm on the hunt for one now!
Unfortunately, I am still left untreated as every specialist had suggested I go back to my primary and after I explained to them that he does not believe in fm they recommend pain management. Well, I live in a small town. We have one pain management center. I called to schedule an appointment in late March and was given an appointment for mid August. So, I continue to suffer with the fm, degenerative arthritis throughout my body, spinal stenosis and 2 bulging disks.
I have been online researching fm and stumbled upon this forum. I must say, it was like I have been in a crowded room w ith strangers and this forum was finally a familiar face. It is amazing to read everyone's stories and understand exactly how you all feel. I have always been the type to push through everything, fight the fatigue, deal with the pain, put on the happy face, because I thought this was all in my head. I thought that how I felt was a result of having worked a very physically straining job for 50, 60 hours a week for 17 years. I can't explain how it makes me feel to know it is not in my head and that I am not being a "whimp" about how I have been feeling.
I am so sorry for this lengthy introduction, but I really needed to get this all out there to people who will understand for a change. I look forward to meeting some "familiar faces" so to speak.
