Oh honey. What are you on for treatment?
I'm a 25 year old female. I have two daughters, six and seven. My fibromyalgia used to MAJORLY impact my marriage and my children. I used to sleep up to 22 hours a day on a regular basis--16 hours at a bare minimum. I was SO depressed, no matter how happy I was, if you know what I mean. I had constant spasms that, prior to this diagnosis, we a major concern. I was tested for carpal tunnel, cubital tunnel, seizures, tumors, epilepsy, I was taken to a neurologist, I went through phsyical therapy, I was falsely diagnosed with MS... I would reflexively jump away from anything that made contact with my lower back, shoulders, or rib/chest area. I would experience allodynia that I mistook for hot flushes; my face, neck, and sometimes chest would get really hot and it felt like I was being stuck with thousands upon thousands of needles.
My kids, only 3 or 4 at the time, were so used to my pain that they'd warn me before hugging me or holding my hand, and they'd start off with barely any pressure. They knew that if I tapped/rubbed their back they could hug me tighter, or if I squeezed their hand they could squeeze back. If they saw me on the floor or shaking, they would bring me my purse with my meds in it. My children were taught about medicine and the dangers of it at a very, very young age. They know that taking medicine you don't need makes you very sick, in pain, could kill you, etc. The way that it effects our children... It's terrible and sad and I hated myself for being so weak that my children had to see it, and even worse, had to take care of me sometimes, before they could even read. I cannot express how much self loathing I had because of that.
But it won't be like that forever. Once you find a good treatment regiment, it gets better. You become almost normal.
Not to be intrusive, but where are you from?
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