I am new here but was first diagnosed in 97. Hello everyone! I suffered from brain fog in the beginning quite a bit, but in 2008 it changed greatly after an incident where I awoke with loss of vision and left sided paralysis. Thankfully the loss of vision was momentary,and after many months most of my mobility returned.
Since that time my memory has got significantly worse, my most significant symptom. After 12 doctors and specialist we have been unable to find anything more conclusive then my fibro and they now just say it is all related. I can't say I agree, but since then I know exactly what you are going through. I have had my teenage daughter ask me where I am going on the way home, only to stop and realize I didn't know where I was. My day to day experiences are forgotten quite often, I can no longer cook big meals...used to be the hostess with the mostess
. I often mix up my children's names, birthdays,etc..., miss appts frequently, had to stop paying the bills due to mix ups of dates and accounts. I can recall most things before 2004 but after that everything is quite fuzzy. No longer can keep track of meds and what doctor said what. All in all, I am so thankful for my supportive spouse and his help. This is the biggest reason why I can no longer work. Some days I feel down right stupid, though I graduated from nursing top of my class. I feel like I am 80 but am only 42.
I really worry about what lays ahead as well. Alzheimers and dementia? Is that where it will all lead. Some days it is down right scary the things I do, and I hate that my children and husband have to double check everything I do. So I guess my original point...lol, you are not alone, I am there everyday! Sorry for the tangent...ahhh what a life we all lead, but we are so lucky to be here, it could be so much worse.