Have apparently had FMS since childhood. Diagnosed myself @ age 39; had confirmation by several docs, beginning w/ neurologist. 56 now. Returned to school in 2000, but "Katrina" forced a relocation (and separation from my family) - a few months shy of graduation.
Difficult getting care - when you've passed the point where regular employment is feasible. Navigating Medicaid is tricky, yet I AM finding a few answers (how to access better care). Most therapies that might actually help are $$. Recently tried Savella. Did more harm than good. I take Elavil & Neurontin, with a little Tramadol. B-complex, D-3, fish oil, coconut oil - as I can afford.
Difficult getting care - when you've passed the point where regular employment is feasible. Navigating Medicaid is tricky, yet I AM finding a few answers (how to access better care). Most therapies that might actually help are $$. Recently tried Savella. Did more harm than good. I take Elavil & Neurontin, with a little Tramadol. B-complex, D-3, fish oil, coconut oil - as I can afford.