There are so many variables, and no one should compare their story to another's. Fibro/cfs affects each of us differently and limits us each to varying degrees. Some jobs are easier to manage with fibro than others (e.g., quiet desk job vs. construction worker).
I am fortunate. While my fibro/cfs is bad enough that there are definitely some jobs I could no longer do, I was able to transition to a job that was less physically demanding. I have great co-workers, so stress is very low. It is an ideal job for me with my fibro.
Having said that, there are some days I have to re-arrange my work project schedule around whether I'm having a "good" fibro day or not. And 100% of my days end with me having to drive the quarter mile home because I can't walk that far anymore. I come home, fix something easy for supper (or bring home take-out) and crash in the recliner until bed. I do no housework except to grocery shop on Saturday. My child has to do the laundry, dishes, and the usual housekeeping work. Sometimes a friend comes by and cleans my house or bakes meals for me to freeze.
That's how I survive. I'm a single parent, so not working is not a financially-viable option for me. It sucks that basically all I can do is work and lie in bed, but that's my reality. The positive side is that my child is learning independence, and while I can't be out playing ball in the yard, we have instead cultivated a rich life from the recliner. We've read literally thousands of pages of books aloud together. I do a lot of intimate listening and we discuss the deep questions of life. If I were physically able to be busy, perhaps we would have missed these precious quiet times together.
So now you've heard some of my story.
