Sienna
New member
- Joined
- Jul 23, 2018
- Messages
- 4
- Reason
- DX FIBRO
- Diagnosis
- 04/2018
- Country
- US
- State
- TX
Hi. I'm new here and have never done a forum of any kind before, so forgive any ignorance in how this works.
I think I may have had on and off fibro symptoms for possibly the last 10-ish years, but it went unrecognized until last October. I was in my Senior year of college and feeling so out of it. I started hurting all over and became very tired. I thought I had the flu. Went to the doctor but everything was fine. It cleared up, ... but then came back. Again, I thought I had the flu ... but they said I didn't. This happened repeatedly until it stopped clearing up and we realized something else was going on. I had tons (20-something in all, I think) tests done over the course of several months. The only thing that came back not normal was my Vitamin D ... was 11. I started taking it, and it helped some with energy/weariness, but not significantly. In April, I saw a rheumatologist, and he diagnosed me with Fibromyalgia. Since I was moving back home after graduation, he didn't prescribe meds. He just said to get a good doctor when I got back home. Unfortunately, I don't have health insurance any more, and I don't have a job. So, I'm stuck with this diagnosis, feeling miserable most of the time, and not knowing what to do about it. The nurse at the university was great and helped as much as she could, ... but my family just doesn't seem to get it. They don't understand that when I say "I' hurting," that it isn't a minor pain but severe. I don't want to complain ... I don't want pity ... but I do wish they could understand better just how hard this is for me.
I think I may have had on and off fibro symptoms for possibly the last 10-ish years, but it went unrecognized until last October. I was in my Senior year of college and feeling so out of it. I started hurting all over and became very tired. I thought I had the flu. Went to the doctor but everything was fine. It cleared up, ... but then came back. Again, I thought I had the flu ... but they said I didn't. This happened repeatedly until it stopped clearing up and we realized something else was going on. I had tons (20-something in all, I think) tests done over the course of several months. The only thing that came back not normal was my Vitamin D ... was 11. I started taking it, and it helped some with energy/weariness, but not significantly. In April, I saw a rheumatologist, and he diagnosed me with Fibromyalgia. Since I was moving back home after graduation, he didn't prescribe meds. He just said to get a good doctor when I got back home. Unfortunately, I don't have health insurance any more, and I don't have a job. So, I'm stuck with this diagnosis, feeling miserable most of the time, and not knowing what to do about it. The nurse at the university was great and helped as much as she could, ... but my family just doesn't seem to get it. They don't understand that when I say "I' hurting," that it isn't a minor pain but severe. I don't want to complain ... I don't want pity ... but I do wish they could understand better just how hard this is for me.