Hi Everyone!

[Miraenmi]

Hi All,

I'm a newbie and just thought it would be nice to say Hi , to you all. I've joined to connect with others with Fibromyalgia and Chronic fatigue. I have found it very isolating not being able to dicuss issues and feelings around this condition and made the decision to connect because I realise that it has really changed my life and I would appreciate any tips or words of wisdom in dealing with this condition positively!

 

[sunkacola]

Hi @Miraenmi and welcome to the forum.
For words and tips on managing fibromyalgia, I recommend you read this post:

S

Thread 'My advice for managing fibromyalgia (especially for newcomers)'

Jul 21, 2020

I am not a doctor or anything, just a person who has lived with fibromyalgia for several years now and has done a lot of research and trial and error experimentation. What follows is just basics. There are a lot of variations. You will find your own versions of everything I say, as this is not a prescription and there are no guarantees. But I believe that if you can do these things, it will improve the quality of your life.

First thing to remember is that Fibro is not a death sentence and if you learn how to manage it, it will very possibly not always be as bad as it is now.

I was at...

• sunkacola
• Replies: 29
• Forum: General discussions about fibromyalgia

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This is a good place to discuss what is or is not working for you (we are all different), to ask questions, explore your feelings about having fibro and how it affects your life, and even just to complain or vent if you ever want to. We are all here to help one another, and I hope this forum is helpful to you.

 

[SBee]

Hi @Miraenmi and welcome something I would suggest is to remember to go gently, as best as life lets you. Chronic fatigue is the hardest part I have to deal with. Whist I do listen to my body and try not to do too much on any given day, I sometimes push to far and make things worse. Yet it sound s contradictory, but movement is vital to try to keep stiffness at bay. Best bit I ever read was 'think movement not exercise'. So find a gentle activity you like that isnt too strenuous you cause more pain,maybe swimming if thats feasible with the fatigue, or Tai Chi or yoga, try to see it as a kindness to yourself.
You already seem to have grasped that the best way is to try to accept your life has altered and want to ensure that your own attitude is as important as the physical changes. And despite this... i still get it wrong and take days to recover from pushing too hard - just try not to beat yourself up over it. Take care

 

[Miraenmi]

Thanks for making me feel welcome. ️

 

[Miraenmi]

Thanks for making me feel welcome. ️

 

[Badger]

Welcome @Miraenmi life with Fibro can be isolating, it's so important to be kind to yourself. The forum will be helpful to speak your mind and talk about coping strategies. Atb