Help sleep patterns?

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jacqfedup39

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Joined
Dec 12, 2022
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15
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DX FIBRO
Diagnosis
11/2015
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UK
Hi
I really struggle with my sleep pattern and moods.
I have to most (normal as possible days) , go to bed in the afternoon because I wake up in the night.
I seen various devices on amazon some tens some not.
I would like if anyone k ows if there are suitable for fibromyalgia?
 
Hi, I struggle getting to sleep and trouble getting back to sleep after waking during the night. Something that helps is a self hypnosis for sleep video by Paul McKenna on YouTube. I also listen to Yoga Nidra which is a form of body scanning and relaxing. It can also be practiced during the day like Non Sleep Deep Rest by Dr Andrew Huberman. They say it helps towards training the nervous system.

It's something I'll have to stick to in future. Herbal tea in the evening may also help. I've not seen device's as such for a while but what I've mentioned above is worth a try.
 
Don't know if a device is what you need. I think I would be wary of spending money for some device that says it is going to help you sleep. A TENS machine is not for sleep, although is can help with some kinds of pain. Since it works by sending tiny electrical impulses to your muscles, it's more likely to keep you awake than put you to sleep. Some say melatonin helps. I use medical grade cannabis at times. There are many different things you can try, including medication. What works for one doesn't necessarily work for another. It's best to do your own experimentation.
 
I agree with @Badger and @sunkacola.
I really struggle with my sleep pattern and moods.
I have to most (normal as possible days) , go to bed in the afternoon because I wake up in the night.
I seen various devices on amazon some tens some not.
I would like if anyone knows if there are suitable for fibromyalgia?
I can't remember having heard of any devices that help insomnia except things like ear plugs, eye masks, blackout blinds.
Although normal sleep hygiene would recommend not sleeping in the daytime, it did help me for quite a time.
What helps me most is preventing/alleviating >30 triggers outside or inside my body,
then 12 of my supps, 3 from Huberman that Badger named above, who's recommendations like Shelsick's help me a lot,
and looking to the sun very early etc. the way they and other sleep experts are now recommending due to new-ish studies.
 
normal sleep hygiene
This "sleep hygiene" thing is, in my opinion, total bunk.

Inability to sleep well, or enough, is a very individual thing. The things that are listed as "proper sleep hygiene" should only be used as a guide to the various things that a person could try out to see if they helped, and not as a prescription for what will help.

Having been a chronic insomniac all of my life, having been born with insomnia, I speak from extensive experience. Many of the things that people are told are bad for sleep are things that are only bad for some people, and can help other people sleep.

If a person, such as Jay says above, can sleep in the daytime and it helps them to get enough sleep in a 24 hour period, then that's what they should do.
 
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Hi I'm with the not sleeping and i really try not to sleep in the afternoon but sometimes its necessary for me to do so, I've tried lots of things for me it's a routine I've got my self into now ... a nice warm bath ... meditation works alot of the time for me and sometimes it's not about the going to sleep either it's about staying asleep is the real problem for me .
 
I seen various devices on amazon some tens some not.
Seeing TENS, I was thinking of devices that might directly make you sleep. But looking into it more, I can see things for instance that help with apnea (more professional though), then sound machines for sounds that help us go to sleep, and light machines (for "daylight" to improve the circadian rhythm). But more likely it's about all the new types of diagnostic/analytical sleep devices (using all kinds of sensors and giving feedback, increasingly with the help of Artificial Intelligence and eventually more and more the actual Machine Learning (ML) kind of Artificial Intelligence (AI).
All of these are things - sound, light and diagnostic - I've heard of a few people using.
I myself used a daylight lamp last winter till I started managing to get real light outdoors, which is so much brighter and better for us than we think, even on overcast days.

These are sort of like sleep lab, which I do recommend people to do, altho it didn't help me much. But as opposed to the stationary lab or at home, they can be used long term, can analyze and give feedback the better they get. E.g. they can (try to) base alarms on your previous sleep rhythms, so you get woken at the best possible time. Or they can (try to) work out and remind you of how/when to improve your circadian rhythm. Like pace counters, but more complex.
Problems as yet are reported to be: the companies aren't transparent about how valid & how reliable the data is, the data may contain conscious or unconscious bias, it's hardly possible to influence where the data is being collected (movement, GPS position and sound), and on a mental level the data could make people overly concerned, causing more harm than good.

As an example for something how much can go wrong, my main professional sleep lab result showed 78% snoring. The docs sent me to ENT. ENT recommended a laser reduction of tissue in my sinuses (somewhere there). But also that they wouldn't really say that a reason for snoring was that evident. I checked by recording my sleep noises with high quality equipment for 2x8h and it turned out I only made a few funny noises for a few minutes in all that time. I'm sure it was what was stuffed up my nose to measure my breath that made my breathing worse, aside from that I do often have stuffy nostrils, but have learnt how to get them under control.

Now your question @jacqfedup39 was if these are suitable for fibro.
Comparing to my experiences above, these devices could no way have been able to detect any(?) of my 30 triggers.
And they couldn't have recommended me the supps I've found to help.
But if they were of the right type and good enough they might help control bedtime, sleep breaks and waking up time better. Not in as much detail as I can myself, I don't think, but praps as an additional tool that points to things I don't realize.

I'd say that's also a matter of personal preference, if that actually helps put sleep management into place or just worries.
I analyze a lot myself anyway. Others might worry or analyze too much, others might not be able to analyze at all themselves, it'd be better than nothing, and still others will have a load of data thrown at them that they're not able to put into any kind of use change anyway.

This "sleep hygiene" thing is, in my opinion, total bunk.
Inability to sleep well, or enough, is a very individual thing.
Yep (except as rough orientation). And that's where sleep hygiene devices as yet have to fail big time. They analyze that what you are doing is wrong and tell you to do what everyone should do, in the opinion of the builders of the devices. No fibro experts, no experts for you, probably not even sleep experts. They'd need to be made more reliable, have sleep experts validate their functions, made much more variable (e.g. be able to tell us how long my afternoon nap should be today, if at all) and most of all we'd need to be able to interact with them, to individualize the programming.
I've found out that sleeping 7h30 is much better for me at the moment than the 8h30 (net) I thought and strived for, that zombifies me & gives me headaches for a few hours. Now once I could tell a device exactly how I feel before during and after and it'd adapt it's recommendations accordingly, via machine learning, that will be when they start becoming fibro-compatible. As long as that's not there I'll be preparing the ground for that on my blog. Then that could be mangled into a black box and come up with something praps useful....

"Technology and artificial intelligence have changed all aspects of life, including how we understand sleep. Wearable devices have flooded the consumer market with unvalidated sleep data that the general public finds useful but also worrying and confusing. While a better understanding of surrogate markers of sleep disorders has resulted in newer diagnostic medical sleep devices being made available, their place in the NHS sleep pathway remains unclear." The talks are about
  • Heart rate variability and sleep stage detection from wearables
  • Acoustic analysis of snoring and respiratory events from smart phones
  • Use of electronic patient guided consultation
  • Awakening innovation: New technologies transforming sleep pathways
  • Surrogate jaw markers of obstructive sleep apnoea
  • Acoustic diagnostic devices in sleep apnoea
  • Sleep Revolution: Using technology to improve care
and another 2 to be confirmed. (Royal Society of Medicine, I think I'll take part, does sound interesting.)
 
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