Hello,
I have become beyond frustrated lately. My symptoms started in November with pain that started in the palm of my hand, following day my arm, than legs. It lasted 4 days, I saw a massage therapist and I was better, no more symptoms. January 5th same pattern only this time lasted 17 days and at this point I had a ton of neurological symptoms. Felt shocks going off around my body, would get "flutters" under my skin. It felt like popcorn popping under my skin. I than realized at a later date they were twitches. During that time I had experienced a ton of symptoms. Everyday it got worse than got better and went away. Since then I've had 2 more relapses. My biggest issue is pain. My arms and legs burn and ache. My newest symptoms is similar to Restless leg syndrome. I've had that for years however this is different. Started while laying, then a few days later it affected both arms and legs all day long. They were minor jerks not visible to others but i can feel it and notice it. I did some research and they look most like myoclonus twitching. The pain in my arms and legs are the one symptom I get everytime I relapse. There has been times were I woke up and I felt like I would soon lose my mobility. A few days later I am completely fine. For instance typing this message is causing a lot of pain in my hands. Things feel heavier, can barely climb stairs but then I go into remission and I am fine for a few weeks. Biggest triggers for relapse is stress and overuse of my hands. I am a makeup artist. If I use my hands more one week my symptoms return.
I have had an MRI results normal. I though MS however I don't a normal MRI is a true indication that I don't have MS. I'm seeing a rheumotologist next month as my neurologist thinks it is fibromyalgia. I feared ALS because of the twitching, jerks and pain and decrease in mobility (only in relapse). I have requested a nerve conduction test waiting for a call. My only moments of hope is I do not think ALS comes and goes with symptoms. Also here is the kicker... My sister in July started experiencing very similar symptoms as me and mine started in November. Her MRI is scheduled in 2 weeks. Can anyone relate? Everytime my symptoms return I get so depressed I can barely function because I have no idea what is going on. This is beyond frustrating.
I have become beyond frustrated lately. My symptoms started in November with pain that started in the palm of my hand, following day my arm, than legs. It lasted 4 days, I saw a massage therapist and I was better, no more symptoms. January 5th same pattern only this time lasted 17 days and at this point I had a ton of neurological symptoms. Felt shocks going off around my body, would get "flutters" under my skin. It felt like popcorn popping under my skin. I than realized at a later date they were twitches. During that time I had experienced a ton of symptoms. Everyday it got worse than got better and went away. Since then I've had 2 more relapses. My biggest issue is pain. My arms and legs burn and ache. My newest symptoms is similar to Restless leg syndrome. I've had that for years however this is different. Started while laying, then a few days later it affected both arms and legs all day long. They were minor jerks not visible to others but i can feel it and notice it. I did some research and they look most like myoclonus twitching. The pain in my arms and legs are the one symptom I get everytime I relapse. There has been times were I woke up and I felt like I would soon lose my mobility. A few days later I am completely fine. For instance typing this message is causing a lot of pain in my hands. Things feel heavier, can barely climb stairs but then I go into remission and I am fine for a few weeks. Biggest triggers for relapse is stress and overuse of my hands. I am a makeup artist. If I use my hands more one week my symptoms return.
I have had an MRI results normal. I though MS however I don't a normal MRI is a true indication that I don't have MS. I'm seeing a rheumotologist next month as my neurologist thinks it is fibromyalgia. I feared ALS because of the twitching, jerks and pain and decrease in mobility (only in relapse). I have requested a nerve conduction test waiting for a call. My only moments of hope is I do not think ALS comes and goes with symptoms. Also here is the kicker... My sister in July started experiencing very similar symptoms as me and mine started in November. Her MRI is scheduled in 2 weeks. Can anyone relate? Everytime my symptoms return I get so depressed I can barely function because I have no idea what is going on. This is beyond frustrating.
Nice way of saying your symptoms are there now lets see if you have it. I am so terrified. I've been in bed crying all day. I have to wait 2 weeks for this damn test.
