Eye sight
- Thread starter Elainev
- Start date
hwalker376
New member
- Joined
- Aug 6, 2024
- Messages
- 5
- Reason
- DX FIBRO
- Diagnosis
- 01/2024
- Country
- UK
Hi 
I suffer with blurred vision but usually in the evening when I'm tired. I do wear glasses but they don't help at that point. Not sue if there is anything that can relieve this but eager to hear if there is anything.
Hope you're ok
I suffer with blurred vision but usually in the evening when I'm tired. I do wear glasses but they don't help at that point. Not sue if there is anything that can relieve this but eager to hear if there is anything.
Hope you're ok
MissNeverWell
Distinguished member
- Joined
- Oct 15, 2022
- Messages
- 115
- Reason
- DX FIBRO
- Diagnosis
- 03/1992
- Country
- CA
- State
- ON
While trying to sort out various causes of vision symptoms, I came across a post on Fibromyalgia Action UK by Kathy Longley, who requested people willing to talk about vision problems and fibromyalgia. One such respondent was Dr. Mark Pelligrino, who also has fibromyalgia. He said at least 50% of his FM patients have trouble with vision. "Patients can commonly experience symptoms of eye pain, sensitivity to light, blurred vision and fluctuating visual clarity, difficulty focusing, visual overload and dry eyes," Dr Pellegrino explains. "Many patients have to change their glasses prescription frequently because of fibromyalgia-related vision fluctuations and changes in visual acuity. They also find their eyes are particularly sensitive to smoke or that environments with very dry air cause vision difficulty."
Unfortunately, I wasn't so lucky in being able to attribute my vision problems to fibromyalgia. However, they were different (relating to distorted, double and blurred vision, particularly when wearing sunglasses and looking left/right. I get dizzy with movement, can't look through mirrors and can focus better when closing one eye or the other, but not both. After going to the Emergency department when seeing double of a motorcycle that passed us on the highway (my niece was driving me back from an outing), I discovered a mass at the base of my brain which is putting pressure on the bone (and my guess is also the optic nerve) and impacting the brainstem. It's been a horrific discovery and I'm still debating whether or not to let nature take its course rather than letting modern medicine play around with my brain. A very hard place to be. I've already been somewhat traumatized by tests such as CAT scan and MRI, and they want another CAT scan with die. What happened to client self-determination - that die is toxic, and there is far too much radiation, I've had way too many x-rays this past year. Truth be told, I hate the medical profession, and I don't apologize because that's where I'm at right now.
So, if these symptoms you are experiencing are different or unusual, and you have a gut instinct that something is wrong, don't let your family physician or optometrist put you off. When I had the head pain in the occipital bone area and then the vision problems, I was concerned about the two symptoms occuring together, so a friend from the church got me in to see her g.p. Both that doctor and the new family physician at the same clinic (whom I initially rejected during a meet and greet but later took her on as my doctor)I dismissed my concerns, said that any symptoms from a previous fall would show up long before now, and assumed my head pain was fibromyalgia. My mass (they think it's benign but it's in a tricky place and they can't be sure), was probably growing slowly for years. I think it was triggered by head injuries, but you know how everything is attributed to genetics these days. No one else in my family had such a brain tumour, although mom had meningioma (on the skull itself), and I have one apparently. That might explain additional symptoms with my right eye.
I think the key is a balance between familiarity with fibromyalgia symptoms, especially with your body in particular, and unusual ones (whether related to FM symptoms or not) that don't fit right with you and cause you concern.
Unfortunately, I wasn't so lucky in being able to attribute my vision problems to fibromyalgia. However, they were different (relating to distorted, double and blurred vision, particularly when wearing sunglasses and looking left/right. I get dizzy with movement, can't look through mirrors and can focus better when closing one eye or the other, but not both. After going to the Emergency department when seeing double of a motorcycle that passed us on the highway (my niece was driving me back from an outing), I discovered a mass at the base of my brain which is putting pressure on the bone (and my guess is also the optic nerve) and impacting the brainstem. It's been a horrific discovery and I'm still debating whether or not to let nature take its course rather than letting modern medicine play around with my brain. A very hard place to be. I've already been somewhat traumatized by tests such as CAT scan and MRI, and they want another CAT scan with die. What happened to client self-determination - that die is toxic, and there is far too much radiation, I've had way too many x-rays this past year. Truth be told, I hate the medical profession, and I don't apologize because that's where I'm at right now.
So, if these symptoms you are experiencing are different or unusual, and you have a gut instinct that something is wrong, don't let your family physician or optometrist put you off. When I had the head pain in the occipital bone area and then the vision problems, I was concerned about the two symptoms occuring together, so a friend from the church got me in to see her g.p. Both that doctor and the new family physician at the same clinic (whom I initially rejected during a meet and greet but later took her on as my doctor)I dismissed my concerns, said that any symptoms from a previous fall would show up long before now, and assumed my head pain was fibromyalgia. My mass (they think it's benign but it's in a tricky place and they can't be sure), was probably growing slowly for years. I think it was triggered by head injuries, but you know how everything is attributed to genetics these days. No one else in my family had such a brain tumour, although mom had meningioma (on the skull itself), and I have one apparently. That might explain additional symptoms with my right eye.
I think the key is a balance between familiarity with fibromyalgia symptoms, especially with your body in particular, and unusual ones (whether related to FM symptoms or not) that don't fit right with you and cause you concern.
30 plus years
Active member
- Joined
- Sep 15, 2023
- Messages
- 64
- Reason
- DX FIBRO
- Diagnosis
- 01/1994
- Country
- US
@MissNeverWell
So sorry about your concerning discovery. You're likely filled with a flurry of emotions! Being almost totally blind from a retinal disease, I well know the challenges diminished vision can produce. The absolute hardest one, though, especially with fibro, is taking bad falls. Like flying facedown off a curb I didn't see, or banging my head into a door I didn't realize was open.
Still trying to recuperate from a whiplash-type fall that happened late June after I got dizzy coming out of the shower and fell, falling on my forehead and possibly passing out? It was awful.
Anyway...my advice to you is to BE CAREFUL. You don't need the extra pain and slow recovery from that type of thing on top of the symptoms and stress you already have.
Please remember to breathe and take one day at a time. And do keep us posted.
So sorry about your concerning discovery. You're likely filled with a flurry of emotions! Being almost totally blind from a retinal disease, I well know the challenges diminished vision can produce. The absolute hardest one, though, especially with fibro, is taking bad falls. Like flying facedown off a curb I didn't see, or banging my head into a door I didn't realize was open.
Still trying to recuperate from a whiplash-type fall that happened late June after I got dizzy coming out of the shower and fell, falling on my forehead and possibly passing out? It was awful.
Anyway...my advice to you is to BE CAREFUL. You don't need the extra pain and slow recovery from that type of thing on top of the symptoms and stress you already have.
Please remember to breathe and take one day at a time. And do keep us posted.
MissNeverWell
Distinguished member
- Joined
- Oct 15, 2022
- Messages
- 115
- Reason
- DX FIBRO
- Diagnosis
- 03/1992
- Country
- CA
- State
- ON
Thank you for your empathic response. Oh, yes, the emotions are overhwhelming at times - shock, horror, terror, overwhelm. The come in waves. It has been a rollercoaster of a week. I went to the opthalmologist on Friday, and after an optic nerve scan, eye pressure, peripheral vision test and a neurological eye movement exam along with the regular vision test, I was relieved to learn that the optic nerve was fine and my vision was actually good. The problems are caused by the tumour impacting the nerve that controls eye movement, particularly the right eye. She said it is regenerative (my word, I forget what one she used) once the pressure is removed. Most recover fully, but there are percentages of people who only have some recovery or none at all. It would take about 4+ months. If I still have problems, they can put a prism in the glasses. I was a basket case; luckily, my brother took me. I would not have been able to handle it alone. Now I have a neurosurgeon appointment on Tuesday, which I am absolutely dreading. My sister will be taking me there. While I don't take the attitude of why me, I am flabergasted because I eat healthily, exercise, don't drink/smoke. I thought it would be something like an impingement on a cranial nerve or something, but I never expected this diagnosis in a million years.
The mass affects the brainstem, which in turn affects balance (although compared with other people's experiences, it's still rather mild yet), so my brother brought over the walker that his partner's mom used before she died. It definitely makes a difference.