Burning pain in breasts

[JayCS]

i’m sad for you cos you try really hard with different concoction

Delving into that is diverging long off-topic - so in italics...

Thanks - yeah... Generally since getting the MCAS on top I'm getting regularly closer to my wit's end.... with a certain amount of sadness, inner exhaustion, exasperation...
100s of treatments at my finger tips, not just the 50 concoctions [see below], prepared to implement them, 'research' more, trial and analyze no end, every day all day and night. And still having difficulty getting my energy up from 10% to 20% or more, my sleep's suddenly got really difficult again....
But to clarify: I do actually still usually get my burning pains down, even quickly, by increasing other "potions", like GABA.
My local pains with exercises / stretches / acupressure. And my gut by strictly avoiding food triggers.
So I still have a fairly high quality of life considering "I can hardly move around much"....
There are however many things I use that I don't immediately sense, and supps like B-vitamins are one area which seem to be helping only indirectly. I tried stopping 5 supps the other day that I thought might not be doing much: it showed - so back to ~25.
(I actual thought a concoction is something like a witch's magic "potion", had to look it up - is there another similar word? And had to look up witch's/witches too... )
If the Chinese acupuncture doesn't work out, I'll just be back in acceptance mode. And I think my condition will then be more stable, cos acupuncture does make my body 'work', causing lots of ups, half-ups, and downs...

I'm actually starting to retire from my work even more. Formally by having to decide to take all my tons of overtime next year. (Meaning I can continue like now working a little bit, but no longer using sick leave notes.) And practically, by throwing away stuff I now "know" will not be needing any more....
I was struggling to get to 40% "energy" even before MCAS. Now I'm losing sight of further recovery of enough energy.
There's still a little hope that the Chinese acupuncture can get me at least back up to 30% like it did a few weeks ago.
But my wife no longer shares this hope....

 

[Auriel]

@JayCS I been wondering, if all the stuff you take isn’t making you feel better anymore have you thought about taking them all out to see how you feel? Also I’ve been thinking if the tumour on your back might be why things aren’t making a difference anymore (even though your trying very hard) also if I had one I’d name it boris (something that really shouldn’t be there but still is, that’s a bit naughty I do know ; ) )

 

[JayCS]

@JayCS I been wondering, if all the stuff you take isn’t making you feel better anymore have you thought about taking them all out to see how you feel? Also I’ve been thinking if the tumour on your back might be why things aren’t making a difference anymore (even though your trying very hard) also if I had one I’d name it boris (something that really shouldn’t be there but still is, that’s a bit naughty I do know ; ) )

Hehe - Oi loik the way you thinkin grrl... ;-) - f. it all and chuck 'em in the bin! - quite a few times I've been asking myself that.

However what we have to remember is that I have most of my FM symptoms very well under control, and none of them have got worse. Due to the jabs I got MCAS with 25 new or FM-similar but changed symptoms and due to the supps (as well as food trigger avoidance) that I also have most of these well under control.
So it's not the case of "any more" at all, it's the case that the jabs smashed me to the floor, and the new supps have healed all bumps and bruises inside of weeks. Just nothing's been able to get me up off the floor, but that's the MCAS, not the FM.
I'm fine, just I can't move much since each of the jabs...

And looking at the supps: None of them, not even GABA, is for FM alone, they are all also for my lipids, for the MCAS and/or my tooth/jaw inflammation (as well as my seizures). I am "only" on 25, despite the 3 additional conditions leading to 11 new supps, and being on 25-30 for fibro alone before, because I've had to take some out that were harming and others because they weren't helping. I also recently stopped my sleep ones as my sleep was the only thing getting better, partly due to MCAS, partly acupuncture. However sleep has gotten really bad again, so I'm upping them again. And as I said I just stopped 5 I thought wouldn't make a difference, but that showed they help. When I forget some, I immediately or soon after have to pay the price.

So if anything it's not the supps, it's the acupuncture that I should stop. But I'm gonna give it the 2nd 10-script to prove its worth, after all, maybe it was that that got me up to 30% energy.

And Boris the German Baker: All docs say it can't be "him". My double jab experience says it's the MCAS, nothing else. And even if I'd decide to let them take him out of my back, just to be sure, from experience with a spinal tap that would be a guarantee for long-term back problems, one of my most sensitive areas, incl. severe immediate reactions, problems with being in hospital: I'd be much worse off, and not just short-term.

 

[Auriel]

Ahhh I gotcha