Recent content by Sueb24

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    Questioning my ability to judge pain levels

    Not to belittle your post Sarah but I really do feel your pain. I’ve largely given up trying to explain my pain levels to people as I’m sick to death of all the comments like ‘maybe you’ll feel better tomorrow’, or ‘you do seem a little down at present’ or (the worst of all) ‘I know how you...
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    Pain increasing

    It’s insulting the way these things are handled. My private consultant was very annoyed when a particular physio refused to treat me. If they don’t feel able to treat people they shouldn’t be doing the job. Surely a trained physio would know what to do with most scenarios like ours? All I would...
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    Pain increasing

    And back at you @SBee 😊 Good luck with the group video call. I’m not sure I’d be up for that to be honest. I did a number of video calls with a private counsellor specialising in people with chronic health issues & that was hard enough. That’s finished now but I’m not convinced it helped much.
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    Pain increasing

    I really agree with all of this. The body being ‘so wrecked’ resonates completely. On better days I ‘cope’ and those people I come in contact have no idea how much pain or distress I’m feeling because I appear to be out & involved with the world. But, inside I’m wrecked, and the slightest...
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