Recent content by SBee

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    Intermittent fasting - positive results??

    Tiny steps is the only way for me @sunkacola and @Badger otherwise I will always fail. I had a (rare) good appt with a new GP recently, usually NHS drs are generally only given about 8 mins per appointment... i was in there over an hour. ( he is bound to be reprimanded if he keeps up with such...
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    Hello! New here, have had pain and headaches for several years.

    Hi @rayman just wanted to say hello. I totally agree with @sunkacola that you are welcome on here, and I hope we can be able to support you. One thing I did want to say is if a dr suggests exercise, it doesnt just mean things like going for a run, or swimming. So exercises ( or physiotherapy)...
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    Intermittent fasting - positive results??

    @Badger i genuinely feel any changes for the better of our bodies also impacts on our minds. It means we are wanting to do something positive for ourselves, show ourselves some kindness. My character is that any massive change seems too much or I wont be able to stick to it, but smaller stuff...
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    Studies show.......

    @sunkacola quite possibly one of the strangest recommendations I have come across... And yet. Weirdly addictive to watch,and dont know if its all in my head, and if it does lessen my stress, but it really does make me feel better! Must be viewed with sound on to get full benefits. Not what...
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    Intermittent fasting - positive results??

    Thats a great commitment you and your husband undertake @waypat. Im genuinely enthusiastic on doing the 16/8 which seems to work well in my day to day life. A 24 hr fast would not work for me but its so good you two have found IF beneficial to yourselves. Whilst blood tests in Jan I hope will...
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    Questioning my ability to judge pain levels

    Same back @sunkacola - we all need propping up sometimes and no one knows better than us within the world of living with fibromyalgia and anyone with constant chronic pain, just how hard it can be. Its genuinely helpful to be able to lean on one another at times. Its plain to see that all of...
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    Questioning my ability to judge pain levels

    Hiya @Sueb24 I agree. I would rather someone said nothing rather than the trite comments made if we try t o explain our pain. I am sure some people are well meaning, but this constant no relief pain is hard enough to have explained let alone living with on a 24 hr basis. I prefer now, should...
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    Effective pain med on horizon?

    Wishing you well @Ian waxman thats the bastard side of strong meds, they just dont let you go easily. Weaning off. Is the only way. Take care
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    Questioning my ability to judge pain levels

    And now I'm really smiling and feeling the love - always back at you @JamieMarc 😘
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    Questioning my ability to judge pain levels

    Shows we are quite a hurt group of people doesnt it @sunkacola and @JamieMarc. You know I desperately would like to gather us all up in a mass hug just so we are always aware that indeed we ARE cared for, even if so many times we and our pain seems invisible to others. I truly hate that so...
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    Questioning my ability to judge pain levels

    You got those emotions and reactions to the utter chaos of seeking help just right @sunkacola It is sometimes difficult to know we genuinely need ' outside' professional help, and the whole process of trying to arrange a much needed appointment - and for you, very urgent I see as not being...
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    Questioning my ability to judge pain levels

    Thank you @sunkacola I really appreciate your support and for giving me the reminder to believe in myself. I know too well from experience ( indeed have written many times ) that we cannot expect people to understand how it is to live as we do. I know fully that we are extremely strong people...
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    Questioning my ability to judge pain levels

    There probably isnt an answer to this, but in the past few weeks I am almost starting to think I cant possibly be in the constant state of pain, and also of my feelings of the depth of pain. When I speak with any medical professional I tell them the truth - I am in constant pain, 24hrs no let...
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    Psilocybin Microdosing Research?

    Little found on UK sites @JamieMarc . Seems to be a class A drug, so not legalised here, tried a few fibro forums/sites and seems mostly to be used in the micro dose for depression and anxiety ( good UK site Health Unkocked is a quite extensive collection of various respected health sites and...
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    I'm going to do something I never do.....

    Whilst you are moderator on here @sunkacola its important for us all to remember that you arent just that title. You are a person who lives with what can be a very debilitating condition,( and fibro never plays fair. ) and its important to remember ,despite all the advice you give and the...
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    Intermittent fasting - positive results??

    @Badger evil north wind for us too, even inland. Regarding hunger pangs, what probably helps me a lot is for the past 3 years or so I never actually feel hungry. Assume is a meds side effect. So although I enjoy food, I dont actually ever feel hungry. Helps in this situation. Any weight loss...
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    Intermittent fasting - positive results??

    Being honest here @JamieMarc, whilst being in an ok range weight wise, the (devastating for me) loss of good exercise due to chronic fatigue means I have put some weight on. looking forward to some occupational therapy in Jan to help with that. So yeah, anything I can change is a plus. Fear...
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    I'm going to do something I never do.....

    @sunkacola I agree with the replies from @30 plus years and @BoandBuzz . Keeping it short I just dont think that person understands what a true friendship is. I can accept that some people will not understand all the aspects and effects of living with fibro entails . But for you to explain again...
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    Intermittent fasting - positive results??

    Hey @JamieMarc no way do I consider your reply a hijacking - most post flow the way a good conversation does, whatever the input is a sharing of experiences that help us all find ways that may work, or indeed may not work for us individually. I do feel the fasting may work for me, in that my...
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    Intermittent fasting - positive results??

    Afternoon @Badger hope your part of Wales isnt snowed under... In Herts\Cambs area we got away with hard frosts only ( so far 🙄) Good you are mostly managing the intermittent fasting. Im weirdly worried in that I have found it so easy to work within my daily routine that I must be doing...
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    Pain increasing

    Yeah @Sueb24 shows just a little more of the madness of bureaucracy within the NHS at times.. Normally I would be able to almost laugh it off, but as the months go on without physio I am finding that harder to do. Kind of feel its another nail in my health coffin. I try to do so much for myself...
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    What's worked for me

    also from my perspective,being able to initiate techniques to help myself, it helps me feel a.little bit more in control of my symptoms, a kindness I can offer myself when so many things seem beyond my own control. I feel I am working with myself rather than fighting it.
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    What's worked for me

    I agree. Its encouraging to hear of methods that an individual finds beneficial @MrBrett hope your progress continues. I should be joining a hospital physiotherapist group in a couple of months. It is more for the deterioration I have in my hands and wrists from inflammatory arthritis, but the...
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    Bad night sweats

    I never lime to presume anyones age or personal health details unless they like to share @Hayley_d ! Only other thing I can think of is maybe a side affect to any meds you may be on? Its so very easy to 'blame' a different symptom on fibro, I am very guilty of doing so myself, but more on the...
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    Bad night sweats

    Hi @Hayley_d Welcome, hope you can find a lot of information and support within the forum. Regarding night sweats the one thing that immediately sprung to mind was could this be hormonal? Either perimenopause or post menopause can cause pretty awful night sweats - obviously you may not wish to...
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    Pain increasing

    Thanks @sunkacola you are so right. I tried to explain to the assessors for PIP benefit that there arent actually ' good days ' its more a case of days that arent quite as awful as most days. And that, in our terms, it what constitutes as our version of 'good'. Whilst I have accepted that I...
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    Pain increasing

    Agree @sunkacola suspect most of us use the ' oh, I'm fine ' attitude. Sometimes its because I simply dont have the energy to try to explain whats really going on, because most people would not understand ( and as we often say on the forum why should they? ), and also because many of us are...
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    Pain increasing

    Hi @Sueb24 Relentless is a word that resonates so much with me to. Wake up in pain, go through the day in pain, go to bed in pain, broken sleep because of pain. Its endless. I definitely have the 'public' face and the 'private face '. It really is cruel feeling like we say we 'cope' as though...
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    Pain increasing

    Hi @dramaqueen Welcome. Strangely I had chronic fatigue syndrome many years ago, which improved and now have fibromyalgia a symptom which I really struggle with is ... Chronic fatigue. ( amongst other symptoms ). For myself, but like you, my health deteriorated with a huge bundle of heath...
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    Pain increasing

    Hi @mcleod66 i understand the frustration of waiting for an appt for therapy, had long ling waits myself. I dont know if it will help, but have you tried the UK site FMA UK? A fibromyalgia site that has helplines where you can talk with ' real ' people who have fibro themselves or within their...
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    Pain increasing

    Hello mcleod66 Many of us unfortunately suffer from flare ups which increase symptoms. Can you think of anything you may have done differently that may have increased the pain? All of us know if we push ourselves too far it can have pretty disastrous results. Perversely not doing enough moving...
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    Intermittent fasting - positive results??

    Hi Frizzybee, Clonidine is a new one for me, had to look that up. In UK I cant see it being listed as used for fibromyalgia, but many drugs seem to be used not only for their primary function, but also as they can be effective for other conditions too, amitriptyline being one of those of...
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