Recent content by poolnoodles

  1. poolnoodles

    Is this my fate...?

    Hi malloryrose, I completely understand how you feel and have the same thoughts almost every day. :( I was 23 when I was diagnosed with a degenerative joint disorder and fibromyalgia. This whole year feels like I've been in a mourning process, and I get even more sad when I realize I'm feeling...
  2. poolnoodles

    Massage for Temporary Relief?

    Massages are great! I pony up a massage every few months -- it acts like a "reset" button for me. I've found the myofascial release method works the best for my pain. It can be really painful while it's being done, but, man, afterwards you feel great! If you're not too tender, it might be...
  3. poolnoodles

    New - Secondary Fibromyalgia

    Hi Marley, thanks for the welcome! Ehlers Danlos Syndrome is a pretty rare disease, a genetic collagen disorder. It shows up in different "types." I have the hypermobility type, which means my joints bend backwards with chronic pain since there's little stability from tendons. There are skin...
  4. poolnoodles

    What are your favorite Salad Toppings?

    Have you ever tried watermelon with feta cheese? It goes together surprisingly well. I saw a recipe once that had watermelon-feta-cucumber kabobs and it looked so good. You're lucky to have a husband who makes such fancy salads!
  5. poolnoodles

    Do you feel more fatigue in weather extremes?

    I always get flare-ups during change of season, and it's worst between Winter/Spring and Summer/Fall. For about two weeks twice a year I'll sleep 11 hours a night, whether I want to or not! I've found that taking it easy and not scheduling anything important during those times has helped me out...
  6. poolnoodles

    supplements

    I've been taking magnesium supplements for migraines, and it has helped my body aches a bit as well. If your joints hurt, I know others swear by glucosamine and/or chondroitin. My doctor recommends taking a Vitamin D supplement, but it is dangerous to overdose on that so I avoid it. Of course...
  7. poolnoodles

    New - Secondary Fibromyalgia

    Hi all, I'm new. Was diagnosed this May with Ehlers Danlos Syndrome and secondary fibromyalgia. Is anybody in a similar boat?
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