notsogrimreaper
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  • I don't remember what it is called will update that late but its a very low dose of something that is used for people with alcohol dependency that has shown positive results. I will update later once I receive it.
    Jemima
    Jemima
    It's probably low-dose naltrexone? Good luck, notsogrimreaper!
    Finally had an appointment with my pain management/neurologist and he adjusted my topiramate to the correct dosage 200 mg a day been on it a week, positives - appetite has gone down to the point that I don't want to eat lol so yay back to eating to survive not because im bored lol, and sleeping better, and now just waiting for the pain to subside more. He also is trying another medication that is a trial for fibro
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    1Debra
    1Debra
    I am happy for you that you are doing better! Would
    you be able to give the name of the trial medication?
    SORRY I've been among the missing, was in quarantine, My hubby tested positive and since i had close contact had to stay home 10 days with no access to work computer. My hubby had both shots and still got covid, I had covid in Feb( hubby was neg and didn't get it) and not shots but didn't get it. Yet was sleeping in the same room with him before he tested positive. this thing makes 0 sense!
    Jemima
    Jemima
    Welcome back - glad you're OK!
    notsogrimreaper
    notsogrimreaper
    like I said i didn't catch it at all my hubby did, and his only symptoms were loss of taste and smell for 2 days but tested positive, i tested negative but since close proximity had to quarantine as well. But all's well that end's well. :)
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    52 and living with Fibro for 10 years
    notsogrimreaper
    notsogrimreaper
    Survivor of an alcoholic household, 1 husband who never grew up, 1 abusive narcistic husband, raised 4 girls mostly on my own, diagnosed with severe scoliosis and after 3 surgeries diagnosed with fibromyalgia
    notsogrimreaper
    notsogrimreaper
    Found the love of my life married him last year , riding motorcycles and mc club life. Back in school to be a Vet Tech. 52 years young Living life the best I can- refusing to let my illness control every aspect of my life.
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