Blogs

Need advice please

I have been in a terrible flare for the last 3 weeks, daily functioning is impossible. Spoke with my doctor today who told me a flare should never last more than 3 days and I need to get active and function normally to feel better. Is this normal practice for a doctor to say this or is it time to find a new doctor? I really liked her in the beginning but now I'm not so sure. 

Help finding a doctor in pa

Hi! I'm looking for recommendations on doctors who specializes in fm in the Lehigh valley area, although I am willing to travel to Hershey or philly is the doctor is great. Any help would be appreciated!

Fibromyalgia and hypothyroidism...are they linked?

Hi there, i was just wondering how many of you have hypothyroidism along with fibromyalgia. My doctor seems to think there is some correlation. I've been reading posts and I found that the two things everyone seems to have in common is that we were all go-getters before the fibro. People that push their bodies...maybe too much!? The other thing seems to be the fatigue and exhaustion. I do get exhausted from dealing with the pain to get things done, but for me the lack of energy only happens when my thyroid is high. It took me a few years to figure out the difference!

Mindfulness/ Pain Management Therapy

I am a 54 year old woman. I am American however am married to a Swede and have been in Sweden for 13 years. After a huge slump in my pain curve i became depressed quite severely in 2014. I have a condition and progressive disease process called degenerative disk disease and as I began perimenopausal symptoms around 50, life became unbearable in a variety of ways. I have a systemic form of arthritis and although it has been referred to as "reactive arthritis", my symptoms can mimic Rheumatoid Arthritis and gout. 

"The Fibromyalgia Letter"

I have a letter to share its long but it explains so much of what I go through as well as many others.

Just joined and saying hi

Hi All, I'm from Yorkshire UK.i was diagnosed with fibromyalgia, chronic fatigue and ibs in December 2015. Although diagnosed not long ago I have ongoing symptoms and problems with this for the last 10 years. I am still struggling to manage my symptoms and it is affecting all parts of my life in ways that can be so debilitating it's depressing. Doctors have pretty much said nothing more to do other than learn to live with it but I am now struggling to find support from people who understand how it feels.

Trying to get diagnosed!

I am 29 and still in search of an actual diagnosis....even though I have been certain it is fibromyalgia for a few years now.

Pissed off.

I want to tell you something about my experience with Fibromyalgia and Small Fiber Neuropathy. First of all, it’s one of those things my doctors never wanted to admit I had. I have been through so SO so many tests, it’s not even funny. The last EMG I did, I had my wife sit in on just so she could see how awful and painful that test is. It’s not fun. It’s not a joke. My pain is real - yet the EMG doesn’t actually show the extent of it.

I healed myself naturally, symptoms gone

I suffered with CFS for 15 years and wanted to die. I finally found how to heal myself naturally. It was a combination of physically healing myself with getting off of wheat, sugar, junk food etc. and taking colloidal silver to clear excess yeast, which is at the root of so many illnesses. But almost more important was dealing with why the illness showed up, releasing emotional issues, traumas etc. and stop identifying with being sick and being able to let it go. Even being ill can be a crutch because it is a comfort zone and familiar.

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