Husband Day to Day
Submitted by Bruin11 on Fri, 02/01/2019 - 10:20
New to the forum and wanted to reach out to those of you that could offer some guidance on care giving role I play. My wife of 35 years has battled Fibro for 7 years now.
Background:
I still work full time and have to travel out of town occasionally.
She manages pain with Butrans patch and supplements with Tramadol
Lamictal for anxiety/bipolar stabilizer
I manage most of the household and most of the errands and shopping.
She has difficulty getting quality sleep and is restless at all hours of the night. We manage with some meds to assist and made the master bedroom her room and comfortable.
Intimacy and loving connections are rare. We tried planned date nights and was great, but quickly fell off the priority list.
I cherish this woman and proud to be her husband.
The difficulty I face is managing the ebb and flow of the good days and bad ones. Triggers of stress and flare ups seem to come from unpredictable sources and effect her greatly.
Often the support and caregiver role I play and welcome, makes her more anxious and feelings of guilt.
It would be helpful to understand from the experience in this forum to understand the care giving role without unintentional creating additional anxiety for her.
Additionally it would be appreciated if any of you see the need to re-evaluate her med regiments giving advances and side effects. She has been on this med path for almost 4 years.
Lovingly frustrated!
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